Our participants expressed particular requires for adaptable perform several hours and options for remote get the job done; issues accessing unemployment Positive aspects and various social help products and services; and also a motivation for Bodily guidance to assist with fatigue management. These desires are according to the “chances” discovered within the Division of Health and Human Expert services Health + Long COVID report. Broader policy recommendations for addressing requires consist of producing govt steering about appropriate accommodations in school and at operate [34,35,36, 38], and involving occupational therapists and vocational rehabilitation professionals in determinations all over fair lodging [38].
According to the Social Stability Administration, twenty-year-olds Possess a twenty five% potential for becoming disabled in advance of they achieve retirement age. While some may possibly Get well immediately, Other individuals may by no means Get well thoroughly or in the slightest degree.
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We reflexively regarded the power dynamics with the Investigation And just how which will have motivated decisions in coding, how we manufactured themes and selected distinct quotes. All through the heritage of educational publishing, researchers and researchers outside of the experiential group usually talk for people with lived working experience. In such cases, the a few PhD students ended up speaking for individuals with Prolonged COVID. In order to include choice Views and also to respectfully signify Individuals voices, we approached a scientific member on the Very long COVID/ME/CFS advocacy Neighborhood. She inspired us to take into consideration option framings that far more authentically reflected expertise, challenged Ill/well narratives, and advocated for plan modify.
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